Creating Hope, Raising Awareness, and Supporting those affected by CRPS.

HEY, I'M MILLER

I was diagnosed with Complex Regional Pain Syndrome (CRPS) when I was 10 years old.

I used to be a normal 10 year old girl who loved to play golf, basketball, volleyball and spend time with friends. Until one school day in November of 2013, my life flipped upside down from a friendly game of basketball at recess. Within a blink of an eye, my leg was in excruciating pain. Little did I know, I would never get to shake this pain away.

Although living with CRPS has been hard, it has helped me find my purpose in life. The pain forced me to fight for the life I never thought I would have. Now, I get to make an impact, bigger than myself, by giving back to the Complex Regional Pain Syndrome community and sharing my story to help others find hope.

MILLER KERR, FOUNDER OF BURNING HOPE, IS A BEACON OF STRENGTH AND RESILIENCE, RISING ABOVE THE CHALLENGES OF CRPS TO EMPOWER, INSPIRE, AND TRIUMPH.

FEATURED IN

What is CRPS?

Complex Regional Pain Syndrome is an abnormal nerve condition caused by an overreaction to pain signals that the nervous system can’t shut off. CRPS is ranked highest on the McGill pain scale, and unfortunately has no cure.

GET INVOLVED

Burning Hope’s Blanket Project

November is Complex Regional Pain Syndrome (CRPS) Awareness Month. Burning Hope will provide handmade, no sew fleece blankets through The Blanket Project to comfort kids suffering from CRPS or other pain-afflicting diseases. These blankets will be provided to children in pain programs at the Cleveland and Mayo Clinics and the Children's Hospitals of Philadelphia, Seattle, and Dallas.


Burning Hope diligently spearheads two annual events that have become integral to our yearly schedule. The first event, 'Walk Strong', is held each April and serves as a beacon of resilience and empowerment. Later in the year, we host the 'Blanket Project' every November, providing comfort during the winter season.

Featured Events

Walk Strong

Walk Strong is a 3k walk designed to raise money for CRPS research and treatment through the Reflex Sympathetic Dystrophy Syndrome Association (RSDSA).

Blanket Project

The Blanket Project collects fleece blankets from volunteers across the country during November, Complex Regional Pain Syndrome Awareness Month.

RECENT MESSAGES

RECENT MESSAGES

Featured
Don’t Judge a Book by It’s Cover
Don’t Judge a Book by It’s Cover

I hate the faces on a pain scale. As a kid, I could never relate to these pain scales. It told me if I was at an 8, I should be crying. Well… I was at an 8, and I was not crying. In fact, other than the inability to walk, I probably looked like a 3 :) on the pain scale. This reigns true for me even more today. Over the years, I have gained a high pain tolerance and the ability to conceal the feelings stemming from my pain. When you experience pain on a daily basis, you can’t cry every time you hurt, otherwise you would be living in a pool of tears.

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Persevering Through EDS
Persevering Through EDS

I have been a dancer since before I could walk, dance has always been my hope, through the scariest of times in my life. I have been dancing since I was 2 years old, but I found my true passion for dance when I joined drill team my freshman year of high school. I was always marked as the clumsy one due to the fact that every possible “freak accident” happened to me, mostly in dance class.

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Faith Through the Fight
Faith Through the Fight

The journey is never easy with any diagnosis you might receive, especially when you know there’s a chance of dying. You can be afraid and scared but with FAITH, strength and hope, the odds are much better!

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